Welcome to Teens Living With Cowden Syndrome! This is a support group for teens and young adults with Cowden's Syndrome or Bannayan Riley Ruvalcaba Syndrome, both genetic disorders caused by a PTEN gene mutation. This group is intended to work with your doctor, not to take the place of one. Please confirm all information you hear at this site with your doctor. Also, this is a support group to connect and rely on one another, find ways to cope, and to just have fun. Please, no profanity in your usernames and refrain from profanity in posting.




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